Letter sent to MEC Pierre Uys
20 September 2005
Minister Pierre Uys
Western Cape Ministry of Health
PO Box 2060
Cape Town, 8000
Dear Minister Uys
RE: Call by concerned health workers demanding action against the Dr Rath Foundation
We are health professionals involved in the Provincial antiretroviral programme. This is probably one of the largest challenges our health services have ever been confronted with.
We hereby voice our outrage at the unhindered activities of the Dr Rath Health Foundation. In the name of this Foundation, our patients are being inundated with propaganda encouraging them to stop life-saving medicine.
Many of us have had experiences with HIV-infected patients who have had their health compromised by stopping their antiretrovirals due to the activities of this Foundation.
We are deeply concerned that materials distributed by the Dr Rath Health Foundation claim to have the support of our government. For patients with advanced HIV disease, stopping antiretroviral medicine, even for a few weeks, can be the difference between life and death.
For patients who are relatively well on antiretroviral medication, interruptions in treatment are known to increase the likelihood of viral resistance and treatment failure, and could in turn lead to premature death.
For our community at large, infected and uninfected, any intervention which increases the chances of circulating strains of drug resistant virus are a public health risk, putting patients who are presently infected and those at high risk of infection in danger of becoming infected with an untreatable and fatal form of infection.
In addition, the Foundation is in breach of many of the ethical principles we, in our professions, adhere to in order to protect our patients. They have conducted unregistered clinical experiments on patients, and distribute unregistered medicines with potentially harmful effects.
Our patients are vulnerable because of the burdens of illness and associated stigma and we believe, as state-employed health professionals, that it is the duty of our government to protect these patients by ensuring that the medical care that they receive conforms with the requirements of the law and is based on widely accepted scientific data.
It is our belief that this would ensure that their constitutional rights of access to health care are realised. We are bound by conscience to make this call on our government.
We are writing to you to request that action be taken at your instigation, whether by your office or the appropriate arm of government or some other appropriate body, immediately against the Dr Rath Health Foundation, for the following contraventions:
1) The conduct of human clinical trials without application to and authorisation from the Medicines Control Council as required by the General Regulations to the Medicines and Related Substances Act 101 of 1965 (regulation 34 of the General Regulations No. 510, dated 10 April 2003), and without ethical approval from an appropriate ethics committee for human subjects research.
2) The sale of unregistered medicines which are subject to registration, in contravention of section 14 of the Medicines and Related Substances Act. In terms of the Act ‘sell’ includes the distribution of medicines without financial reward.
3) Publishing and distributing false advertisements concerning medicines, in contravention of section 20 of the aforementioned Act.
In spite of numerous protestations to government officials and bodies such as the Medicines Control Council, we are dismayed at the failure to respond to these infringements. If there is no evidence of action against the Dr Rath Health Foundation by 27 September 2005, we will publicly voice our objection at the failure of government to provide protection to our patients.
We look forward to immediate action against the Dr Rath Foundation and to hearing from you in regard to this dangerous situation.
Signed by (Name, designation and place of HIV-related work):
1. Dr AA Aboo, Physician: Groote Schuur Hospital
2. Dr I Abraham, Principal Medical Officer: Red Cross Children’s Hospital
3. Dr M Abrahams, Medical Officer: Site B HIV Clinic
4. Mr N Adams, Principal pharmacist: Khayelitsha CHC
5. Ms Shabnam Aghdasi, Student Intern: Red Cross Children’s Hospital
6. Sr Patti Apollis, Paediatric Clinical Nurse Practioner: Red Cross Children’s Hospital
7. Dr Valerie Asselman, Registrar: Groote Schuur Hospital
8. Ms Sizeka Baleni, Counsellor: Red Cross Children’s Hospital
9. Dr Z Barday, Physician: Groote Schuur Hospital
10. Ms Victoria Barend, Counsellor: Red Cross Children’s Hospital
11. Sr Asa Barendse, Registered Nurse: Red Cross Children’s Hospital
12. Ms Bejaphi, Adherence counsellor: Hout Bay / Imizamo Yethu
13. Dr Linda-Gail Bekker, Physician: Desmond Tutu HIV Centre, Gugulethu and Masiphumelele Clinics
14. Prof. Solly Benatar, Physician and Bioethicist: UCT
15. Mr Galroy Benjamin, Adherence counsellor: Tygerberg Hospital
16. Ms N Benzi, General support staff: Red Cross Children’s Hospital
17. Dr Alison Berrisford, Medical Officer: Groote Schuur Hospital
18. Ms Marietjie Bester, Registered Nurse: Tygerberg Hospital
19. Sr Jenny Blease, Professional Nurse: Nomzamo, Lwandle, Macassar
20. Dr Liz Blumenthal, Medical Officer: G F Jooste Hospital
21. Dr Peter Bock, Medical Officer: Gugulethu ARV Clinic
22. Ms Gertrude Boswell, Staff Nurse: Tygerberg Hospital
23. Dr Andrew Boulle, Public Health Specialist: Khayelitsha Clinics
24. Dr C Bouwens, Physician: Tygerberg Hospital
25. Ms Mac Briay, General support staff: Red Cross Children’s Hospital
26. Dr A C Schlemmer, Medical Officer: Michael Mapongwana Clinic
27. Dr Jonathan Carn, Neurologist: Tygerberg Hospital
28. Dr Yazied Chothia, Registrar: Tygerberg Hospital
29. Dr David Coetzee, Public Health Specialist and Director, Infectious Disease Epidemiology Unit, UCT: Nolungile Clinic
30. Sr Jean Coetzee, Professional Nurse: Tygerberg Hospital
31. Dr Marlie Conradie, Medical Registrar: Tygerberg Hospital
32. Dr J Cornell, Family Physician : Muizenberg
33. Dr Ruth Cornick, Medical Officer: Hout Bay / Imizamo Yethu
34. Dr Carol Cowburn, Medical Officer: Wesfleur, Red Cross and Gugulethu sites
35. Dr Carol Cragg, Medical Officer: G F Jooste Hospital
36. Dr Danielle Crida, Medical Officer: Gugulethu ARV Clinic
37. Dr E Dalwai, Senoir Medical Officer: Michael Mapongwana Clinic
38. Dr Marta Darder, Pharmacist, Treatment access co-ordinator: Khayelitsha Clinics
39. Ms Christie Davies, Dietitian: Masiphumelele Clinic & Tygerberg Hospital
40. Dr Astrid Dearhorn, Senior Medical Officer: Mitchells Plain CHC
Call by concerned health workers, page 3
41. Dr A deKock, Physician: Tygerberg Hospital
42. Ms U Deseuli, Care giver: Lizo Nobanda Hospice
43. Dr R Dippnaar, Paediatrician: Tygerberg Hospital
44. Dr Anton Doubell, Cardiologist: Tygerberg Hospital
45. Dr J Du Plessis, Registrar: Tygerberg Hospital
46. Dr Nontobeko Dyakopu, Medical Officer: G F Jooste Hospital
47. Dr Clair Edson, Medical Officer: Tygerberg Hospital
48. Prof. Rodney Ehrlich, Director, School of Public Health and Family Medicine: UCT
49. Dr Brian Eley, Paediatrician: Head, Infectious Diseases, Red Cross Children’s Hospital
50. Dr Tania Engel, Principal Medical Officer: Mitchells Plain CHC
51. Sr Lerisha Esterhuizen, Chief Professional Nurse: Mitchells Plain CHC
52. Dr H Finlayson, Paediatrician: Red Cross Children’s Hospital
53. Dr Estelle Floweday, Principal Medical Officer: Gugulethu ARV Clinic
54. Ms Albertina Fokoti, Administration Clerk: Red Cross Children’s Hospital
55. Ms Nelisa Funani, Mentor: Red Cross Children’s Hospital
56. Mr Sikumbuzo Ganuola, Professional Nurse: Nolungile Clinic
57. Ms Funeka Ginger, Chief Social Worker: Red Cross Children’s Hospital
58. Dr Eric Goemaere, Head of Mission, MSF: Khayelitsha Clinics
59. Dr Diane Gray, Medical Officer: Red Cross Children’s Hospital
60. Dr Nelis Grobbelaar, Principal Medical Officer: Paarl Hospital
61. Dr Cornelius Grobbelaar, Chief Medical Officer: Stellenbosch, Paarl & West Coast HIV clinics
62. Sr I Gugwini, Professional Nurse: Nolungile Clinic
63. Dr Nomfundo Gwavu, Paediatrician: Red Cross Children’s Hospital
64. Mr Eugene Hans, Senior Clerk: Red Cross Children’s Hospital
65. Dr Beth Harley, Medical Officer: Langa Clinic
66. Dr Jonelle Hasore, Medical Officer: Tygerberg Hospital
67. Dr H Hassan, Medical Officer: Tygerberg Hospital
68. Prof. Derek Hellenberg, Family Physician and Head of Family Medicine, UCT: Heideveld CHC, Vanguard CHC
69. Dr Francio Henning, Neurologist: Tygerberg Hospital
70. Dr M Heradieu, Physician: Tygerberg Hospital
71. Ms Katherine Hildebrand, Data co-ordinator: Khayelitsha Clinics
72. Sr Leo Holt, Registered Nurse: Tygerberg Hospital
73. Prof. Greg Hussey, Paediatrician and Director, IIDMM, UCT: Red Cross Hospital and Worcestor Health Services
74. Dr Ziyaad Isaacs, ARV Prinicipal Pharmacist: Mitchells Plain CHC
75. Dr Naomi Jackson, Senior Medical Officer: Site B HIV Clinic
76. Dr A Janse Van Rensburg, Paediatrician: Tygerberg Hospital
77. Sr Desray Jansen, Registered Nurse: Red Cross Children’s Hospital
78. Dr Heather Jaspan, Paediatrician: Red Cross Children’s Hospital
79. Ms F Jasper, Enrolled Nurse: Red Cross Children’s Hospital
80. Sr C Jefthas, Chief Professional Nurse: Groote Schuur Hospital
81. Dr Teresa Jennings, Medical Officer: Red Cross Children’s Hospital
82. Dr L Kaarse, Medical Officer: Michael Mapongwana Clinic
83. Dr D Kabeya, Principal Medical Officer: Nolungile Clinic
84. Dr Rafeeq Kagee, Senior Medical Officer: Gugulethu ARV Clinic
85. Dr Hassina Kajee, Senior Medical Officer: Groote Schuur Hospital
86. Dr S Kajee, Medical Officer: Groote Schuur Hospital
87. Dr Nosindiso Kalawe, Medical Officer: Gugulethu ARV Clinic
88. Dr Jean Kanyik, Medical Officer: Groote Schuur Hospital
89. Dr Richard Kaplan, Medical Officer: Gugulethu ARV Clinic
90. Dr Christopher Kenyon, Registrar: Groote Schuur Hospital
Call by concerned health workers, page 4
91. Dr N Khan, Medical Officer: Groote Schuur Hospital
92. Dr Leza Kilfou, Medical Officer: Tygerberg Hospital
93. Prof. Ralph Kirsh, Physician and Head, Department of Medicine, UCT: Groote Schuur Hospital
94. Mr Thomas Kleinhans, Administration Clerk: Red Cross Children’s Hospital
95. Dr T Kootbodien, Medical Officer: Groote Schuur Hospital
96. Dr Stephen Korsman, Registrar: Tygerberg Hospital
97. Ms Wandiswa Kosi, Nurse: Lizo Nobanda Hospice
98. Ms L Krige, Senior Auxillary Nurse: Red Cross Children’s Hospital
99. Dr Tanio Krombeth, Principal Medical Officer: Crossroads CHC
100. Sr N L Magwaca, Chief Professional Nurse and data manager: Khayelitsha HIV clinics
101. Dr David Lategan, Physician: Tygerberg Hospital
102. Ms Delia Lodewyk, Nurse: Red Cross Children’s Hospital
103. Ms Ann Loggie, Pharmacist: Red Cross Children’s Hospital
104. Ms Noluthando Loleka, Social Worker: Red Cross Children’s Hospital
105. Prof. Leslie London, Public Health Specialist: Head, Health and Human Rights, UCT
106. Dr Genevieve Lottering, Doctor: Tygerberg Hospital
107. Dr Ruan Louw, Registrar: Tygerberg Hospital
108. Dr Charlotte Louw, Senior Medical Officer: Groote Schuur Hospital
109. Prof. Gary Maartens, Physician and Head, Department of Pharmacology, UCT: Groote Schuur Hospital
110. Ms Monica Maciwayi, Adherence counsellor: Groote Schuur Hospital
111. Dr Ayanda Madide, Paediatrician: Tygerberg Hospital
112. Dr Bongenkosi Mahala, Registrar: Groote Schuur Hospital
113. Ms Mandalezi, Nurse: Red Cross Children’s Hospital
114. Sr N Mantangana, Professional Nurse and Unit Manager: Site B HIV Clinic
115. Dr L Maree, Intern: Tygerberg Hospital
116. Dr M Marias, Registrar: Tygerberg Hospital
117. Dr Shaheed Mathee, Principal Medical Officer: Site B HIV Clinic
118. Ms Noluthando Mbam, Care giver: Lizo Nobanda Hospice
119. Dr Matt McNally, Medical Officer: Gugulethu ARV Clinic
120. Ms Ncumise Mdinginya, Counsellor: Groote Schuur Hospital
121. Dr Graeme Meintjes, Physician: G F Jooste Hospital
122. Dr Eve Mendel, Medical Officer: City of Cape Town clinics
123. Ms Pumza Mgewu, Care giver: Lizo Nobanda Hospice
124. Ms Jennifer Mkalapi, Adherence Monitor: Tygerberg Hospital
125. Ms Helimamy Moeng, Pharmacist: Gugulethu ARV Clinic
126. Dr S Mthebe, Chief Medical Officer: Langa CHC
127. Dr Shalroch Nalwuma, Medical Registrar: Tygerberg Hospital
128. Dr Cathy Nash, Registrar: Tygerberg Hospital
129. Ms Lena Ndikandika, Counsellor: Groote Schuur Hospital
130. Ms Nduma, Enrolled Nurse: Lizo Nobanda Hospice
131. Dr Johan Nel, Physician: Tygerberg Hospital
132. Ms Nosipho Ngaleka, Nutrition Advisor: Nolungile Clinic
133. Ms Neliswa Nkwali, Care giver: Lizo Nobanda Hospice
134. Ms Nospiho Nogenge, Mentor: Red Cross Children’s Hospital
135. Ms Zanele Nomlana, Counsellor: Red Cross Children’s Hospital
136. Dr Peter Nourse, Paediatrician: Tygerberg Hospital
137. Ms Minky Ntelwa, HIV educator: Red Cross Children’s Hospital
138. Sr N Ntshoza, Professional Nurse: Nolungile Clinic
139. Sr Ntwana, Professional Nurse: Similela Rape Clinic, Khayelitsha
140. Dr James Nuttall, Paediatrician: Red Cross Children’s Hospital
141. Sr Koebra Orpen, Registered Nurse: Red Cross Children’s Hospital
142. Dr Catherine Orrell, Pharmacologist: Desmond Tutu HIV Centre, Gugulethu and Masiphumelele Clinics
143. Sr Osbane, Registered Nurse: Hout Bay / Imizamo Yethu
144. Sr Lucy Pamment, Professional Nurse: Site B and C Youth Clinics
145. Dr M Pascoe, Physician: Groote Schuur Hospital
146. Dr David Pienaar, Medical Officer: Dunoon/Tableview clinics
147. Dr Jennifer Pitt, Senior Clinician: Desmond Tutu HIV Centre, Gugulethu and Masiphumelele Clinics
148. Dr Dante Plekker, Registrar: Tygerberg Hospital
149. Dr Mary-Anne Potts, Medical Officer: Masiphumelele Clinic
150. Dr H Pozesky, Physician: Tygerberg Hospital
151. Sr Mackie Prins, Registered Nurse: Red Cross Children’s Hospital
152. Dr Helena Rabie, Paediatrician: Tygerberg Hospital and Khayelitsha Clinics
153. Dr Kevin Rebe, Physician: G F Jooste Hospital
154. Prof. Stanley Ress, Physician: Groote Schuur Hospital
155. Dr Celeste Retief-Zarrabi, Registrar: Tygerberg Hospital
156. Dr Ernie Richter, Registrar: Tygerberg Hospital
157. Dr Antonie Rod, Registrar: Tygerberg Hospital
158. Dr Paul Roux, Paediatrician: Groote Schuur Hospital
159. Sr R S Modisakeng, Professional Nurse: Gugulethu ARV Clinic
160. Dr Peter Saranchuk, Medical Officer: Nolungile Clinic
161. Ms Mlamli Saula, Adherence counsellor: Hout Bay / Imizamo Yethu
162. Dr Adrian Schmidt, Physician: Tygerberg Hospital
163. Dr E Senalwyk, Medical Officer: Tygerberg Hospital
164. Dr Linda Sigaba, Registrar: Groote Schuur Hospital
165. Mr Kurt Smith, Laboratory Assistant: Tygerberg Hospital
166. Ms Marlize Smuts, Pharmacist: Tygerberg Hospital
167. Ms Ntombinan Sokute, Counsellor: Red Cross Children’s Hospital
168. Dr Rashid Soshi, Registrar: Groote Schuur Hospital
169. Sr Sowtshana, Registered Nurse: Hout Bay / Imizamo Yethu
170. Sr B Soyiko, Professional Nurse: Nolungile Clinic
171. Dr D Stead, Medical Officer: G F Jooste Hospital
172. Dr Martinique Stilwell, Principal Medical Officer: Red Cross Children’s Hospital
173. Sr Gwendeline Summers, Enrolled Nurse: Tygerberg Hospital
174. Dr M T Ishmail, Doctor: Tygerberg Hospital
175. Dr Jantjie Taljaard, Head, Infectious Diseases Unit: Tygerberg Hospital
176. Dr Liz Thebus, Clinical Nurse Pracitioner: Hout Bay / Imizamo Yethu
177. Mr Trevor Toring, Senior Admin Clerk: Red Cross Children’s Hospital
178. Sr N Tsilana, Professional Nurse: Michael Mapongwana Clinic
179. Ms Pumla Tyulu, Adherence counsellor: Groote Schuur Hospital
180. Dr Gilles Van Cutsem, Medical Officer: Site B HIV Clinic
181. Prof. B van de Waal, Physician: Tygerberg Hospital
182. Dr Ronald Van Toorn, Paediatrician: Tygerberg Hospital
183. Ms Moschelle Van Turha, Secretary: Tygerberg Hospital
184. Dr G Van Zyl, Specialist Virologist: Tygerberg Hospital
185. Prof. P vd Merwe, Paediatrician: Tygerberg Hospital
186. Dr Anine Vermaak, Medical Officer: Tygerberg Hospital
187. Dr Thabile Veti, Medical Officer: Nolungile Clinic
188. Dr N Wearne, Registrar: Groote Schuur Hospital
189. Mr Kevin Weir, HBC Co-ordinator: Red Cross Children’s Hospital
190. Dr Brendon Wiggelinkhuisen, Principal Medical Officer: Gugulethu ARV Clinic
Call by concerned health workers, page 6
191. Dr P Wildervanck, Registrar: Tygerberg Hospital
192. Dr Richard Wilson, Registrar: Tygerberg Hospital
193. Ms Mary-anne Wolf, Pharmacist: Tygerberg Hospital
194. Prof. Robin Wood, Physician: Director, Desmond Tutu HIV Centre, Gugulethu and Masiphumelele Clinics
195. Ms Nomandla Yako, Counsellor: Red Cross Children’s Hospital
196. Prof. Tuviah Zabow, Head, Ethics Committee: UCT
197. Dr Macro Zampoli, Paediatrician: Red Cross Children’s Hospital
198. Dr Dayle Zieff, Medical Officer: Groote Schuur Hospital
199. Dr R Zsolt Szilagyi, Medical Officer: Site B HIV Clinic
Author
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Letter sent to MEC Pierre Uys
by Health-e News, Health-e News
September 29, 2005