A practical guide to preparing to die
Death is an event that happens to everyone but most of us are ill-prepared for it, says Dr Liz Gwyther, head of the HPCA.
For this reason, the HPCA has declared Saturday as “advanced health care planning day”, and it is encouraging everyone to talk to loved ones about their end-of-life choices.
It has developed a basic questionnaire to guide people and their families about how they would like their healthcare to be managed towards the end of their lives.
“We encourage people to talk with their family and their doctor about their own choices and preferences in the event of experiencing serious illness or injury and to document our wishes for care if we are seriously ill or injured,” Gwyther tells Health-e News.
Surveys show that the majority of people would like to die at home with their loved ones, but that most end up dying in hospital. Meanwhile, the number of South Africans with advanced illnesses who die in hospitals exceeds internationally accepted norms.
[quote float= right]I was able to assure them that she wasn’t in pain but that she was dying. That was all they needed to hear”
Recently, Gwyther was called to the bedside of a very sick woman who was gasping for breath.
“Her family wanted to know whether she was in pain and if so, if they should call emergency services. I was able to assure them that she wasn’t in pain but that she was dying. That was all they needed to hear. She died a few hours later, at home with her loved ones. If they had called the emergency medical services, they would have hospitalised her and intubated her and she would have died like that,” says Gwyther.
HPCSA offers palliative care to relieve pain, home visits from nurses and carers and emotional support to patients and families.
In January, Discovery Health became the first medical scheme to offer fully comprehensive cover for palliative care as part of an “advanced illness” benefit for terminally ill cancer patients.
The Advanced Illness Benefit provides funding for a multi-disciplinary palliative care team that could include doctors, nurses, social workers and home-based nursing and care worker services, as well as cover for Hospice services, as needed.
“Cover is guided by the agreed individual patient care plan. These costs are paid from Discovery Health Medical Scheme risk funds, and will not affect the patient’s day-to-day benefits,” according to CEO of Discovery Health Dr Jonathan Broomberg.
Dr David Cameron, who is assisting the HPCA to set up a palliative care institute, says that this benefit is a “game-changer”.
“It means that there can be career opportunities in palliative care for doctors,” says Cameron. “Oncologists have realised that they can refer patients to palliative care when their doctor-patient relationship has reached a particular stage, and patients will be able to decline further treatment while knowing that they will still be getting care.”
Discovery Health’s Dr Linda Holding says that feedback from members has been overwhelmingly positive, with more than 200 members already utilising the benefit. – Health-e News.
An edited version of this article was also published on Health24.com
- Read more: When to start palliative care
- Interested in planning for the future but unsure where to start? Download the HPCA’s checklist
Author
Republish this article
This work is licensed under a Creative Commons Attribution-NoDerivatives 4.0 International License.
Unless otherwise noted, you can republish our articles for free under a Creative Commons license. Here’s what you need to know:
-
You have to credit Health-e News. In the byline, we prefer “Author Name, Publication.” At the top of the text of your story, include a line that reads: “This story was originally published by Health-e News.” You must link the word “Health-e News” to the original URL of the story.
-
You must include all of the links from our story, including our newsletter sign up link.
-
If you use canonical metadata, please use the Health-e News URL. For more information about canonical metadata, click here.
-
You can’t edit our material, except to reflect relative changes in time, location and editorial style. (For example, “yesterday” can be changed to “last week”)
-
You have no rights to sell, license, syndicate, or otherwise represent yourself as the authorized owner of our material to any third parties. This means that you cannot actively publish or submit our work for syndication to third party platforms or apps like Apple News or Google News. Health-e News understands that publishers cannot fully control when certain third parties automatically summarise or crawl content from publishers’ own sites.
-
You can’t republish our material wholesale, or automatically; you need to select stories to be republished individually.
-
If you share republished stories on social media, we’d appreciate being tagged in your posts. You can find us on Twitter @HealthENews, Instagram @healthenews, and Facebook Health-e News Service.
You can grab HTML code for our stories easily. Click on the Creative Commons logo on our stories. You’ll find it with the other share buttons.
If you have any other questions, contact info@health-e.org.za.
A practical guide to preparing to die
by kerrycullinan, Health-e News
April 15, 2016